When Will The Week End?

This has been just a yucky week! Nathan had surgery on Monday, which went well and he is recuperating quickly. That's the good news! I came down with a horrible head cold the day after his surgery. So I have been unable to go to the hospital any day this week to be with Nathan. I usually handle all of his acute medical care information, so poor Chris has had to call me a million times each day with another question from the medical team. It seems that the mindset of the team in a Pediatric Intensive Care Unit (PICU) is, "If it's working well, let's tinker with it and see if we can get it to work better. That made it worse? Oh, well!" Anyhoo-it is killing me to not see Nathan for three days or be there for him when he needs me! I feel like the worst parent in the world!

Meanwhile, two of our staff members had new babies last week, and as the Women's Ministries Coordinator it falls to me to arrange for some meals to be brought for the new moms. I made phone calls and put together a schedule of the women who agreed to prepare a meal and gave it out on Sunday, so that everything would be in place before heading into Nathan's surgery on Monday. Almost every single woman on that schedule had to move their night, or something came up and they couldn't do it. To quote Charlie Brown, "AAARRRGGGHH!"

On top of all of this, I completely forgot our weekly Women's prayer group this morning. I suspected a ball would get dropped soon, but I hate that this was it. I hope the women will be understanding.

Chris and I were talking on the way home from the hospital about how no one outside of the two of us really understands all that the last ten years has held for us. I am amazed that even after ten years of being in the hospital and numerous surgeries, it is the hardest thing in the world to leave your baby in the hands of others and wait for the outcome. It is not just hard; I find it to be agony. I don't think I've ever told anyone this besides Chris. Everyone else just takes it for granted that we handle all of this so well, and I am grateful for the testimony that brings to God, but it never gets easy or routine.

At the hospital we used to frequent they made you tell your child goodbye in the hallway and they wheeled him away from you while he was still awake. At least here they let one of us go into the operating room with him until he goes to sleep. But I still have to force my feet to walk out of that room. And then the waiting is excruciating to me, who is used to being at least well informed of his status every moment of the day, if not outright responsible for his status! It is definately one of those times when I literally leave him in the Lord's hands!

I don't know how I could parent if I didn't have faith in a God who is bigger than this life. There are so many uncertainties and things we cannot control, especially with a special-needs child. When I feel like I'm about to come unglued I have to remind myself that I am never in control anyway, that even when things seem well in control, the control lies in God's hands. And I can't think of a better place for it to be!

2 comments:

joannmski said...

Wow, you go through and do so much!

Maybe it's a good thing you had a cold. This way, Nathan's dad gets a chance to know all of the info as well, and you don't have to always bear the burden of it all.

Praying for you and your family!

joannmski said...

Wow, you go through and do so much!

Maybe it's a good thing you had a cold. This way, Nathan's dad gets a chance to know all of the info as well, and you don't have to always bear the burden of it all.

Praying for you and your family!

 

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